This site is to serve as an informational corner of the internet for all things spoonie, technology, cats and the occasional poker game. My idea is that we all share what we’ve been through, how we deal with our issues, what tools and alternate medicines are out there and what options there are for people.
I have been a spoonie for a long time and it’s part of my culture. As an advocate for spoonies I share and spread knowledge that I’ve learned myself as well as things I’ve learned from other spoonies about their spoonieisms and amazing abilities.
Currently I work in healthcare IT as the director of network operations for a large hospital system where I live. I write “abilities” above because we’ve all heard about each others’ disabilities or disabling chronic illnesses whereas I refer to them as abilities because we can handle things people without chronic illnesses can’t. For example, those of us with migraine, auto-immune diseases, traumatic illnesses and/or mental illnesses have learned to incorporate such things into our lives in ways that others would just give up on. We do things others would dare not do or wouldn’t be able to do if they had something simple like the flu and yes to us, the flu is simple as it goes away. A spoonie has something that will not go away. Not ever. We are the unchargeables, we are the spoonies!
So come on down, look around, participate, it might be fun!